Leland looks like your typical 5 year old little boy, but he is dying

My son was born with a rare and life threatening syndrome called Prune Belly.  When he was 12 days old, we were told that one day he would need a kidney transplant.  Since hearing those words five years ago, I have crossed paths with many people I normally wouldn’t have.

I know Mother’s of children on dialysis, I know Mother’s whose children have received a kidney transplant, and I know Mother’s who have had to bury their child because they died while they were awaiting a life saving kidney transplant.


I don’t want 5 year old Leland to be one of those 21, but the reality is that he is going to die if we don’t find him a match for a kidney soon.

Leland has the same syndrome as my child and he is the same age.  I cannot fathom burying my child.  I can’t.  

There is something about Leland’s story that is a bit different –
His options are slim to none as far as dialysis goes.  He is down to his last and only option, a line in his leg to cleanse his blood, keeping him alive.  They cannot place a line anywhere else in his little body due to other complications such as scar tissue build up.

Look at your own child and try to imagine this as your own little boy.  A boy who smiles regardless of what he goes through, who loves Cowboys and is looking forward to Christmas.

What if I told you he might not make it to Christmas?

This is where you come in.  This is where we need you.  Yes, you.

You can donate your kidney and still life an excellent quality of life.

The transplant and testing is covered by the recipients insurance or in some cases the Transplant Centers Organ Acquisition Fund or OAF.  There is also financial assistance for lodging, meals and travel expenses available to those who qualify.

There are several tests you will need to undergo including, but not limited to:

  • Bloodwork
  • Ultrasound
  • EKG
  • Kidney Ultrasound
  • More Bloodwork

To see if you are the one that can save Leland’s life, please visit the University Transplant Center’s Breeze Transplant Online Health History Questionnaire to get started.

The faster the donor gets their testing done, the faster Leland can get the kidney he needs.

CLICK HERE to start the process

Once you are there, you will see a screen that looks like this.  Due to the fact that 5 year old Leland is under the state’s care, his last name cannot be released.  But – just type in the word ‘news’ for the last name, this will get you to the next screen to continue the survey.  They also cannot release other identifying information such as his blood type, so we need to get as many people as possible to fill this form out.


You have the potential to be Leland’s hero.

If you are not a match for Leland, you could still save the life of one of the people who are added to the national transplant waiting list every 10 minutes.

Please share this posting with everyone you know get the word out about this amazing little boy.